Fibromuscular Dysplasia

[livingwith]

4 Years ago as was a relitively healthy young women of 34 when I suddendly developed chest pain.I put it down to me putting on wieght and being slightly unfit.However after going to the doc and then being sent to the chest pain clinic I was advised I had severe left main stem stenosis of the heart.I was then advised I would need to have a double heart bypass or risk having a heart attack To cut a long story short my consultant thought that the cause of my heart problem maybe FMD.I have for the p...Read the full article

[mollyc]

I just want to mention that there is a Fibromuscular Dysplasia organization. The website is FMDSA.org. They have lots of info to share that can help you and your doctors. Hopefully through your searches, you've already found them.

Hope this helps. There are a lot of us out there. We just had our first annual meeting and the turnout was great so don't feel alone.

Molly