Fibromuscular Dysplasia

[livingwith]

4 Years ago as was a relitively healthy young women of 34 when I suddendly developed chest pain.I put it down to me putting on wieght and being slightly unfit.However after going to the doc and then being sent to the chest pain clinic I was advised I had severe left main stem stenosis of the heart.I was then advised I would need to have a double heart bypass or risk having a heart attack To cut a long story short my consultant thought that the cause of my heart problem maybe FMD.I have for the p...Read the full article

[mollyc]

I just want to mention that there is a Fibromuscular Dysplasia organization. The website is FMDSA.org. They have lots of info to share that can help you and your doctors. Hopefully through your searches, you've already found them.

Hope this helps. There are a lot of us out there. We just had our first annual meeting and the turnout was great so don't feel alone.

Molly

[kptocs]

maybe this is too little too late - but FMD can happen in the coronary arteries- it is much rarer than happening in other areas - like renals and carotid arteries. the other way FMD impacts the heart is secondary - for example it may be in the renal arteries, then cause hpytertension, then impact the heart....

I love my cardio -vascular specialist - and would highlty reccomend him- Dr. Jeffrey Olin in Mt. sinai NY - best to get a clear diagnosis from a cardiaoligiest who treats FMD. He has published quite a bit and would be considered one of the few MD's who manage patients with this rare disease.