[livingwith]

Healthy 25 year old developed vegetative endocarditis secondary to bacterial septicemia. Had to have open heart surgery to rid of abscess on mitral valve. own valve saved. Surgery a great sucess. Now 2 years later developed idiopathic pericardits. Have been hospitalized two times in 4 months with recurring attack. Any body ever experienced this. Is there something else one should worry about?
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[trishwishes]

Open Heart was in 1991. Stents in 2002. Idyiopathic pulmonary fibrosis diagnosed 2000. Dear God and every member on this forum I see the pain of exhaustion from a simple slow walk from a parking lot to a restaurant. I hear the non stop cough that makes it impossible for me to hear on the phone. I see the pillow being squeezed at his chest becaaaause of that "classical pain". I have moved all over the U.S.A., in hopes of finding the " right" place for hubby -- I wanted him to get better, but, instead the recent diagnosis of chronic constrictive pericarditis is so very hard on both of us. I really appreciate all the "posts" in this forum. I am weary and tired -- myself. I am realizing more and more that I need to do all that I used to do and that he used to do.
Please, LOOKERS
become: WRITERS
myself and others we need to hear the truth.
Will be seeing surgeons this week that do NOT want to do a pericardium peeling.
yes: they are reccommended cardiacthoracic surgeons.
So, do we say O.K. shake their hand and say send us your bill, for nothing?
Do we go for a 2nd opinion??
Do we do nothing????
Somehow that does just not feel right. Yet, I am anxious to hear from others at this forum. Thank You!
Do we go locally, or do we travel to big place somewhere famous in the USA???