[goingcrazy7403]

Hi, I am new to this board. but I need to get some answers since none of the drs that I have seen can help me on this..

Let me start from the beginning.. I have had genital herpes symptoms for the past 8 years. I have had numerous hsv 1 and 2 IGG) blood tests.. (5 in total) and they all were negative. I do not get the classic symptom of blisters.. Mine look like pimples.. I have gone to 5 different doctors.. They will not culture what looks like to them a pimple or cyst.. They say that is not herpes.. Mine appear under the skin.. but I get the other symptoms, plus more..

Burning urination, restless legs, pain/ache legs, sore lymph nodes under arm pits, pain down buttocks, pimples on inner thighs which I have been told foliculitis.. but they refuse to culture any of these bumps.

I even had a culture of genital fluid when I thought what I call was a beginning of an outbreak, where it hurts to urinate, itching etc.. (but again no blisters) that genital fluid culture was also negative.

I am also a recovering alcoholic (yes, I am posted on the alcohol forum). The other symptoms that I get just before I feel like I am having an outbreak is the feeling of withdrawal symptoms( what I had when I binge drank). (which is shaking on the inside like my internal organs are going to pop out, foggy brain, clumsy walk, weakness in hands/feet,

I finally talked my last dr to put me on valtrex (have been taking 500 mg since April) (also they would come at least 1 per month.. may be more) because I couldn't deal with this anymore.

She did, but I keep getting these symptoms. I am also menopausal

If you did, does your anxiety feel the same way.. That is what the drs all tell me.. That it is not withdrawal that I am feeling but anxiety .

I have been doing a lot of research on this but herpes symptoms do not match any of these neurological symptoms that are occuring..

Now dr say genital herpes doesn't cause any neurological symptoms, but doing extensive reading from others with this condition.. some say they do experience some sensations..

Cany any one help me on this..
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[GuestOne]

You may want to study Lyme disease. Contrary to popular belief it does occur throughout the entire USA.

If you have any doubt contact your state board of public health and ask for the epidemiology division. Ask them to send you ALL the Lyme case counts. When you get this information, look at the number of cases of Lyme disease in your county. If the number is two or greater, then your county is considered endemic by the CDC. See the CDC's case definition for Lyme disease, specifically the definition of an endemic county. It only takes two cases of Lyme in one county for the county to be considered endemic for this disease.

Lyme tests are very unreliable because the disease supresses your immune system. The CDC says Lyme
disease is a clinical diagnosis. The diagnosis is based upon your symptoms and exposure, not test results.

Contact your state support group for referral to a Lyme literate physician. You may want a thorough evaluation for this disease. Study the information on the Lyme Disease Association and the International Lyme and Associated Diseases Society websites (listed below). Especially read about the inadequacy of testing.


CDC Incidence Map of Lyme Disease in the USA...find your state
Lyme Disease Association
http://www.lymediseaseassociation.org/Maps/index.html#

CDC Incidence Map of Ixodes scapularis and I. pacificus, commonly known as the "Deer tick",
http://www.cdc.gov/ncidod/dvbid/images/tickmap_lg.gif

184 Lyme symptoms
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=021063

Symptom list/discussion
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=043100

WebMD definition of Lyme disease
http://arthritis.webmd.com/tc/lyme-disease-topic-overview


Symptoms of Lyme Disease medical references
http://www.lymeinfo.net/medical/LDSymptoms.pdf

Nerve Damage Due to Lyme Disease
http://thehumansideoflyme.net/index.php

Lymenet Medical Discussion Board
http://flash.lymenet.org/ubb/ultimatebb.php/forum/1/30/0

International Lyme and Associated Diseases Society
http://www.ilads.org/

Canadian Lyme Disease Association lots of good information
http://www.canlyme.com/

California Lyme Disease Association
http://www.lymedisease.org/


Lyme videos:

Under Our Skin by Andy Abrahams & Open Eye Pictures
http://www.apple.com/quicktime/guide/entertainment/

San Francisco Lyme Disease TV Talk Show
http://video.google.com/videoplay?docid=-7379547551496279899&q=lyme+disease&total=265&start=10&num=10&so=0&type=search&plindex=5

Excellent video on Lyme Controversy- ABC News in Virginia
http://cfc.wset.com/external.cfm?p=lyme&menu=news

[stulchinsky]

Hello, this is a forum moderator responding. In addition to the contributions of others in this forum, you can find physician-developed and -monitored information on Lyme Disease symptoms here: http://www.podiatrychannel.com/lymedisease/index.shtml.

You can also read the stories of others dealing with Lyme Disease at this link: http://livingwith.podiatrychannel.com/lyme-disease/.

Best wishes to you all.

[GuestOne]

Thank you.

This is a good description.